4/05/2013

Answering questions

So things have been in sort of a holding pattern with dad. He is on palliative care for now, but I think we may be moving him to hospice soon. I really appreciate people asking me about him and myself, but there are days when I am just so tired of talking about it. Lately when someone asks how he is, I reply "he's alive." I think they get a bit annoyed, but in reality people do not want to hear the truth. They don't want to know that he is dying a slow agonizing death. That he rarely has an appetite and when he does eat,  he often chokes on the food because the cancer is slowly closing his esophagus. They don't want to know that he is choosing not to have a feeding tube put in place so all we have left to do is to watch him starve to death, he's lost 6 pounds in a month and I am sure there is more to come. He is now a shell of the man he used to be and hates the fact that he has to be a burden to us.(We do not feel he is a burden, that is his own thoughts.)  He is often confused and at times am not sure who I am or where he is. He is sick of living and wants to die. So that is how he is.

When I am asked how I am, I never really know what to say because people don't really like to know the ugly truth. The truth is that I am scared to death. I am stretched to the limit and it takes all I have to hold it together. I am so thankful for my kids and niece during the day because without them to care for I would fall apart. I don't want to lose my dad even if he tends to be a crazy, cranky old man. You never know how important your parents are until you have lost one. I pray every day that he goes quickly and peacefully yet I feel a tremendous amount of guilt because I am basically praying for his death. I don't want to watch him die, but I will also not allow him to do it alone. He misses me when I am not there and I have come to need that time with him as much as he needs me to be there. I feel guilt because I don't have the time, home, or resources to care for him. I feel bad when I can't make it by him for a day or two. I feel like a horrible parent and wife because everything in my life is lacking in some way. So when asked how I am, I say fine because otherwise I will completely fall apart.

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