Reunited again

 Four years, one month and one day after my Mom passed away, my Dad followed her.  He never stopped missing her and gave up his will to live when we lost her. I think for him his cancer diagnosis was almost a relief because he realized it wouldn't be long before he saw her again. My Dad and I had a complicated relationship to say the least. As a kid I really disliked him as an adult I learned to accept him for the way he was and eventually totally loved him. His final moments are something I will never forget and I keep going over them in my head. Should I have stayed right next to him, was it wrong I was sitting away from him watching tv? He was sleeping finally after almost three days so I didn't think he would have passed so fast. My father had a lot of fear those last couple of days. I am sure anyone who is facing death would be fearful of the unknown. The thing that gives me solace is knowing my mom was waiting for him. He told me he could hear her calling for him to come now. He asked me if it was mean for him to want to go with her instead of stay with us and I assured him it wasn't. A joker to the end, as I sat next to him crying, he gave me a hug and told me he loved me then he proceeded to grab my nose and pretend like his thumb was my nose between his fingers. A little after that when my brother arrived, he was sitting in his bed making faces at me. That was my dad, always getting someone to laugh, the perpetual clown. I will miss him more than I thought possible. Where my days were filled with thoughts of him or being with him, there is now an empty void.

Answering questions

So things have been in sort of a holding pattern with dad. He is on palliative care for now, but I think we may be moving him to hospice soon. I really appreciate people asking me about him and myself, but there are days when I am just so tired of talking about it. Lately when someone asks how he is, I reply "he's alive." I think they get a bit annoyed, but in reality people do not want to hear the truth. They don't want to know that he is dying a slow agonizing death. That he rarely has an appetite and when he does eat,  he often chokes on the food because the cancer is slowly closing his esophagus. They don't want to know that he is choosing not to have a feeding tube put in place so all we have left to do is to watch him starve to death, he's lost 6 pounds in a month and I am sure there is more to come. He is now a shell of the man he used to be and hates the fact that he has to be a burden to us.(We do not feel he is a burden, that is his own thoughts.)  He is often confused and at times am not sure who I am or where he is. He is sick of living and wants to die. So that is how he is.

When I am asked how I am, I never really know what to say because people don't really like to know the ugly truth. The truth is that I am scared to death. I am stretched to the limit and it takes all I have to hold it together. I am so thankful for my kids and niece during the day because without them to care for I would fall apart. I don't want to lose my dad even if he tends to be a crazy, cranky old man. You never know how important your parents are until you have lost one. I pray every day that he goes quickly and peacefully yet I feel a tremendous amount of guilt because I am basically praying for his death. I don't want to watch him die, but I will also not allow him to do it alone. He misses me when I am not there and I have come to need that time with him as much as he needs me to be there. I feel guilt because I don't have the time, home, or resources to care for him. I feel bad when I can't make it by him for a day or two. I feel like a horrible parent and wife because everything in my life is lacking in some way. So when asked how I am, I say fine because otherwise I will completely fall apart.

Finally Validated

I finally feel validated for all my worries and suspicions concerning Nick. At his last doctor's appointment, the psychiatrist finally admitted that she believes he is on the Autism spectrum and is sending him for further testing and an official diagnosis! While in my head I was yelling "Well, DUH!" My heart was hurting a bit because everything I have thought about him was true and I wasn't just being an over analyzing parent. I knew there was something different about him when he was 19 months old and put his head through a bedroom door out of frustration. Did you notice that I didn't say I knew something was wrong with him? Because there is nothing wrong with my son, he is just a little different as we all are in our own way. As I told his doctor that Nick is just Nick and we will deal with whatever comes the same way we have been dealing with it. Today is World Autism Awareness Day so in honor of that day, I am posting a website so you can inform yourself more about Autism.
What is Autism?