Showing posts with label cancer. Show all posts
Showing posts with label cancer. Show all posts
3/25/2015
It is still feels like it was yesterday
when in fact it was six years ago. I remember going to my parents home that morning to sit with my mom. As soon as I walk into the house I knew something had changed. It was as if the energy had disappeared. I went about the day talking to my dad and brothers. I sat with her and talked to her, I rubbed lotion on her feet, I watched a movie with her and I even updated my friends on what was going on. My mom's best friend from childhood and her daughter and daughter in law came to visit. I remember standing next to my mom commenting that I wasn't even thirty, this shouldn't be happening. I also remember making the comment to her that my Mom was no longer there, she had already moved on and it was just her body waiting to catch up. This made her mad and I remember her telling me that I shouldn't say that because my mom could hear me. I remember her standing next to my mom rubbing her hair trying to get her to open her eyes. Eyes that had been shut for over 24 hours at that point. I also remember the baby inside me rolling around and kicking assuring me that I had to stay strong. I remember forcing myself to eat even though that was the last thing I wanted to do. I remember my brother coming with his family and me telling them she hadn't open her eyes and would never again. I remember the conversation I had with my other brother about how we knew it was her time and he was wondering why she was waiting. Just like that, I knew. I told him she was waiting for me to go home. My mom would not want me there when her body finally got the hint that it was time to stop fighting. My mom who was more than a mother, but my best friend still was looking out for me and protecting me as she had for so many years. My mom would not want me there when it happened and she would not have wanted me to drive the 20 minute drive home by myself after she passed. So after a bit, I kissed my mom, told her I loved her and whispered in her ear that it was ok to go. I assured her I would be ok and I asked her to look over my baby. I hugged my dad and brothers and drove home. Shortly after arriving home, I got into bed and started to fall asleep when she came to me. I remember telling her that I couldn't have the baby until I knew she was ok. She told me she loved me and I woke up to a phone call. Shortly after midnight on the 26th, my brother went to check on her and discovered she had passed. Being the type of mom she was she wanted to make sure no one was there to have to witness that. She waited until they had stepped out of the house for some air before she took her final breath. I told him I already knew because she had come to me. I remember being numb after that phone call and just sitting on the couch in the dark. I knew I had to let my babies know that their Grandma Ida was gone. That was the hardest thing I had ever had to do. I struggled with guilt for a long time because I wasn't there when it happened. Hell, every so often it still creeps up on me. However, I know my mom wouldn't have wanted us to be the last memory of her. She protected us until she drew her last breath.
4/05/2013
Answering questions
So things have been in sort of a holding pattern with dad. He is on palliative care for now, but I think we may be moving him to hospice soon. I really appreciate people asking me about him and myself, but there are days when I am just so tired of talking about it. Lately when someone asks how he is, I reply "he's alive." I think they get a bit annoyed, but in reality people do not want to hear the truth. They don't want to know that he is dying a slow agonizing death. That he rarely has an appetite and when he does eat, he often chokes on the food because the cancer is slowly closing his esophagus. They don't want to know that he is choosing not to have a feeding tube put in place so all we have left to do is to watch him starve to death, he's lost 6 pounds in a month and I am sure there is more to come. He is now a shell of the man he used to be and hates the fact that he has to be a burden to us.(We do not feel he is a burden, that is his own thoughts.) He is often confused and at times am not sure who I am or where he is. He is sick of living and wants to die. So that is how he is.
When I am asked how I am, I never really know what to say because people don't really like to know the ugly truth. The truth is that I am scared to death. I am stretched to the limit and it takes all I have to hold it together. I am so thankful for my kids and niece during the day because without them to care for I would fall apart. I don't want to lose my dad even if he tends to be a crazy, cranky old man. You never know how important your parents are until you have lost one. I pray every day that he goes quickly and peacefully yet I feel a tremendous amount of guilt because I am basically praying for his death. I don't want to watch him die, but I will also not allow him to do it alone. He misses me when I am not there and I have come to need that time with him as much as he needs me to be there. I feel guilt because I don't have the time, home, or resources to care for him. I feel bad when I can't make it by him for a day or two. I feel like a horrible parent and wife because everything in my life is lacking in some way. So when asked how I am, I say fine because otherwise I will completely fall apart.
When I am asked how I am, I never really know what to say because people don't really like to know the ugly truth. The truth is that I am scared to death. I am stretched to the limit and it takes all I have to hold it together. I am so thankful for my kids and niece during the day because without them to care for I would fall apart. I don't want to lose my dad even if he tends to be a crazy, cranky old man. You never know how important your parents are until you have lost one. I pray every day that he goes quickly and peacefully yet I feel a tremendous amount of guilt because I am basically praying for his death. I don't want to watch him die, but I will also not allow him to do it alone. He misses me when I am not there and I have come to need that time with him as much as he needs me to be there. I feel guilt because I don't have the time, home, or resources to care for him. I feel bad when I can't make it by him for a day or two. I feel like a horrible parent and wife because everything in my life is lacking in some way. So when asked how I am, I say fine because otherwise I will completely fall apart.
1/26/2013
My dad is dying.
There, I said it even though it is hard to utter those words out loud. It is amazing that I started this blog because of a shocking pregnancy and I needed an outlet to talk, then the death of my Mom, my own health issues and now my dad.
He was diagnosed with Esophageal cancer in 2001, but after chemo and radiation he was doing well and was considered in remission for many years, until this past July. It started with him having a hard time eating and throwing up. I brought him to the doctor to see if it was a recurrence which was what I thought. At first glance there was no tumor, but the doctor did a biopsy around the previous area to see. It came back positive. We also found out that he has a very small aneurysm in his aorta starting which can't be fixed because of where the cancer is. He opted not to do treatments this time around. He lost his will to live the day my Mom died. He ended up having a stent put in his lower esophagus because the cancer was closing his esophagus making it hard for him to eat or swallow. In the meantime, we had to move him out of his house to a retirement type place because he just was not able to live by himself and he couldn't afford someone to live with him 24/7 to care for him. He seemed to be doing well, he made friends and was even going on some of the outings. However, his health started to nose dive again, he developed pneumonia and his congestive heart failure was irritated. We got that cleared up and he started having problems swallowing again which meant another stent had to be placed. We did that and I ended up having to take him to the hospital for extreme weakness, he couldn't even sit up unassisted for more than a couple of minutes before he fell back. They found he was dehydrated and kept him to pump his fluids back up. He was doing better and was supposed to go home today, but the doctor called to tell me he got worse overnight and he was sending him for a ct scan of his head and back since he was unable to sit up again.
There is nothing I can do but be there for him. He is so tired of living in his body that is giving out on him. He cries and tells me he just wants to go to sleep and never wake up. What do you say to that? He is debating between hospice and something called palliative care which is basically the step before hospice. I want him to choose palliative care, but in the end it is his choice.
My dad and I had our differences when I was growing up, Hell you can even say I hated him, but I have learned long ago to let go of that. He raised us the way he was raised, he didn't know any better. I am not saying I don't still suffer the scars from his hurtful words, but I am moving on. The thing that strikes me funny is how so many people including the doctors and nurses tell me what a great thing it is that I am taking care of him. I find this unbelievable. I am doing what needs to be done. I am fulfilling my promise I made to my Mom to take care of him and I will keep doing it until he dies. So I am asking all of you to please pray for him, that he finds the peace he deserves.
He was diagnosed with Esophageal cancer in 2001, but after chemo and radiation he was doing well and was considered in remission for many years, until this past July. It started with him having a hard time eating and throwing up. I brought him to the doctor to see if it was a recurrence which was what I thought. At first glance there was no tumor, but the doctor did a biopsy around the previous area to see. It came back positive. We also found out that he has a very small aneurysm in his aorta starting which can't be fixed because of where the cancer is. He opted not to do treatments this time around. He lost his will to live the day my Mom died. He ended up having a stent put in his lower esophagus because the cancer was closing his esophagus making it hard for him to eat or swallow. In the meantime, we had to move him out of his house to a retirement type place because he just was not able to live by himself and he couldn't afford someone to live with him 24/7 to care for him. He seemed to be doing well, he made friends and was even going on some of the outings. However, his health started to nose dive again, he developed pneumonia and his congestive heart failure was irritated. We got that cleared up and he started having problems swallowing again which meant another stent had to be placed. We did that and I ended up having to take him to the hospital for extreme weakness, he couldn't even sit up unassisted for more than a couple of minutes before he fell back. They found he was dehydrated and kept him to pump his fluids back up. He was doing better and was supposed to go home today, but the doctor called to tell me he got worse overnight and he was sending him for a ct scan of his head and back since he was unable to sit up again.
There is nothing I can do but be there for him. He is so tired of living in his body that is giving out on him. He cries and tells me he just wants to go to sleep and never wake up. What do you say to that? He is debating between hospice and something called palliative care which is basically the step before hospice. I want him to choose palliative care, but in the end it is his choice.
My dad and I had our differences when I was growing up, Hell you can even say I hated him, but I have learned long ago to let go of that. He raised us the way he was raised, he didn't know any better. I am not saying I don't still suffer the scars from his hurtful words, but I am moving on. The thing that strikes me funny is how so many people including the doctors and nurses tell me what a great thing it is that I am taking care of him. I find this unbelievable. I am doing what needs to be done. I am fulfilling my promise I made to my Mom to take care of him and I will keep doing it until he dies. So I am asking all of you to please pray for him, that he finds the peace he deserves.
3/29/2009
My mom got her wings on March 26th 2009.

I knew when I woke up the morning of the 25th that it would be the day. I felt like something had shifted in the Earth. I can't explain it, I just knew that my mom was gone. I went to her house and saw her and even told my brother that my mom had gone to a better place and her body was just there waiting to let go. I truly felt that. I realize it sounds morbid, but that was just the feeling I got. I was at her house for 9 hours that day and we got no response out of her. It did not matter what we did, her eyes stayed closed. I think we all had a feeling that it was going to happen soon. I stayed until about 10 when my brothers finally urged me to go home and get some rest. I was so torn. Do I stay or go? My brother had said that she was waiting for something. I told him she was waiting for me to go home. So I went and gave her a kiss, told her good-bye and told her it was okay for her to go. I went home, took a shower and got into bed, shortly after midnight, my brother called to tell me she was gone. I was not surprised. I had been in between sleep and consciousness when the phone rang. In my "dream" shortly before the call I told my mom that I could not have this baby until I knew she was at peace and no longer suffering. Was I really talking to my mom? I think I might have been, maybe that was what she was waiting for. I'm sad that she never got to hold this little one, but I know that she will see him/her. We had her waked on Friday and Saturday we put her to rest. That was one of the hardest days of my life. When I went up to say my final good-bye, I kissed her head, told her I loved her and told her to give the baby lots of kisses for me before she sent her down. My mom will always be in my heart, but a piece of me died that day. I wrote a Eulogy that I was able to read at her service although I had to stop several times. I used part of one of my blogs. Here it is.
There are so many great things I can say about my mom. She was not just my mom, but my best friend. She was a selfless woman who loved and cared for her family and friends with all of her heart and soul. She is the wife and mother that I strive to be and even if I am only half as good as she was, I will be satisfied. Of course just like her, after hearing the devastating news that the cancer had spread, she was worried not about herself, but of us. She wanted to make sure we were okay and comforted. She showed no fear of what was to come, yet it had to be there. We know that she is in a better place. A place where she doesn't have to worry about trying to take a deep breath, where she can walk without having to stop to breath. A beautiful place where she was joined by family members and pets that have passed before her. She of course will make that place a little brighter because she has arrived. As much as we will miss her, we know that she will be waiting for us just on the other side when it is our time to join her. Angels walk on the Earth everyday and my mom was one of them. God was just ready for her to come back home to him and we have been blessed that we got her for the time we did. There are many things I will miss about her, but most of all will be her voice. I spoke to my mother everyday if not a few times a day. Usually our conversations were about nothing important, it was just to hear each other’s voice. The first time she came of the ventilator, I walked into her room and she said “Hi baby.” that was the best sound that I have heard. I found a poem I would like to read for you. It is by By Joanna Fuchs
A Sonnet for My Incomparable Mother
I often contemplate my childhood, Mom.
I am a mother now, and so I know
Hard work is mixed together with the fun;
You learned that when you raised me long ago.
I think of all the things you gave to me:
Sacrifice, devotion, love and tears,
Your heart, your mind, your energy and soul--
All these you spent on me throughout the years.
You loved me with a never-failing love
You gave me strength and sweet security,
And then you did the hardest thing of all:
You let me separate and set me free.
Every day, I try my best to be
A mother like the mom you were to me.
There was an article written about my mom in the Chicago Sun-Times. Here is the link of you would like to read it. http://www.suntimes.com/news/obituaries/1500015,CST-NWS-xeaton28.article
3/19/2009
Hey there! Did you miss me?
Or should I ask if you even knew I was gone? Things have been well, hectic, although that doesn't really encompass all that has been going on in my life. My mom, my best friend, the person who I speak to on a daily basis has been very ill. She was rushed to the hospital on February 20th and has been there ever since. She has been diagnosed with Stage 4 lung cancer and the prognosis is not good. She already had COPD and Emphysema so her lungs were shot to begin with. I have been coping as well as I can. I feel like I am on the never ending roller coaster. Just when things start to look hopeful, she has a set back. She has had to be intubated twice and the doctors are now considering a tracheotomy. I used to pray to God to save her because I want her around forever. Now though, I just pray to God that he makes the right decision for HER. I don't want to lose her, but I don't want her to be miserable either. She is a tough fighter and not giving up. She obviously has more things to do in this life because she has been on his doorstep a few times and he has sent her back home. She is looking forward to having a new grand baby to cuddle and love. I have a feeling I will be bringing this little one to the hospital to meet his/her grandmother, but at least they will meet.
I have about 4 weeks or less to go and I myself can not believe how fast time has flown by. I guess a lot of that has to do with the fact that my mom has been in and out of the hospital since September so I haven't really had a ton of time to think about it. I was just thinking the other day that I started my pregnancy years with a parent with cancer (my father was diagnosed with esophageal cancer when I was pregnant with my first) and now I will end my pregnancy years with a parent with cancer. They say God doesn't give you what you can't handle. Well, apparently he has a lot more confidence in me than I do. Besides the stress with my mom, my son has behavior issues and we are dealing with that. We also are no way close to being ready for this baby. Thanks to some wonderful friends, we have some already prepared meals. I did one load of baby clothes and have packed my hospital bag. Outside of that, things are at a stand still. I am just worn out physically and mentally and just don't have it in me to do much more than what is necessary.
I saw my doctor this week and she put me on Zoloft for depression. She gave me a screening for depression and I apparently scored a little high. In the past I have been against meds for depression, bu t I realize that this time around I need a little bit more help. To date I have gained ten pounds. We'll see how much more I gain by the end. I see the doctor again next week and every week until I deliver. I hope my little bundle of joy will show her/his mommy some mercy and come just a little bit early. I am already waddling and forget getting out of bed in the morning, that is a feat in itself. LOL I'll include the latest belly picture and some baby info.

Man do I look huge! It isn't me, it is the computer camera and my husband's sweatshirt making me look like that.
Your baby is still packing on the pounds — at the rate of about an ounce a day. She now weighs almost 6 pounds and is more than 18 1/2 inches long. She's shedding most of the downy covering of hair that covered her body as well as the vernix caseosa, the waxy substance that covered and protected her skin during her nine-month amniotic bath. Your baby swallows both of these substances, along with other secretions, resulting in a blackish mixture, called meconium, will form the contents of her first bowel movement. At the end of this week, your baby will be considered full-term. (Full-term is 37 to 42 weeks; babies born before 37 weeks are pre-term and those born after 42 are post-term.) Most likely she's in a head-down position. But if she isn't, your practitioner may suggest scheduling an "external cephalic version," which is a fancy way of saying she'll try to coax your baby into a head-down position by manipulating her from the outside of your belly.
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